Jude has been potty trained for years now but I was unable to convince his PICU nurse that she shouldn’t put a diaper on him. Jude noticed he was wearing a diaper and he was disgusted. Andy said, “Those are special hospital underwear that you can pee in.” Jude responded: “It’s a diaper, you silly!” …
Monthly Archives: June 2012
Surgery Update
The surgery went well. The neurosurgeon used the same 5-6 inch incision as he used last time. He was able to remove the entire tumor and every cell he could see under a microscope. They put Jude in the intraoperative MRI and used contrast to verify that the entire tumor was removed. They gave him …
Stealth MRI of Brain and MRI of Spinal Cord
Jude had an MRI of his brain and an MRI of his spinal cord today. The spinal cord MRI would be new information and I think that it must have turned out okay or I would have thought the radiologist would have tracked us down by now if he saw something really troubling. Jude really …
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Now I Get It
I heard back from Jude’s oncologist with answers to all my questions and finally understand why she wants Jude to undergo proton radiation treatment since his tumor has recurred. I wanted to not take such a step unless the tumor came back a 3rd time after this next resection because of the risks of radiation — potential …
Wakey, Wakey
This afternoon is Jude’s stealth MRI in preparation for surgery on Wednesday. I got him up early this morning so that he could get some food in his stomach since he can’t eat anything between 7 a.m. and the time he wakes up from the anesthesia from the MRI, at probably 5 p.m. tonight. That …
About Jude
I’m no different than other parents. I am absolutely crazy about my boys and think they are truly exceptional kids. I really can’t say enough about my 5- year old, Jude, and I’m sure my bragging borders on obnoxious sometimes, but I can hardly help myself. From the day he was born, Jude was the …
A Letter to Jude’s Oncologist
Admittedly, I was hoping Jude’s brain cancer had disappeared after the surgery 1-1/2 years ago and hadn’t taken the time to get to know what we are potentially up against. I still have quite a few unanswered questions, as shown below. Hi Dr. Bendel, I have some follow-up questions for you. None of them are …
New Record: 3 Parks in 1 Day
The 3 boys and I went to a nearby splash pad today to give Andy a quiet house so he could edit his podcast. The boys just loved the splash pad, but the water was cold so they only lasted about an hour. We then walked to an adjacent playground (where Levi nearly gave me …
Left Out Levi
Jude is a good big brother and really loves his little brothers. While I’ll get to keep Asher in the hospital room with me and Jude under a special nursing exception, Levi is too little (age 2) to come visit under Children’s Hospital’s strict visitor policy that discriminates against all children under 5. Jude said …