Jude was really excited to sing to me a song he wrote today. It goes, “Christmas, Christmas, is so good. I love God, like I should.” We’ll have to get some audio of him since he’s got the cutest little voice.
Monthly Archives: May 2012
Jude’s First Podcast
This evening I recorded a podcast for echozoe (episode 50, to be released soon). While I had all of the equipment hooked up, I sat down with Jude to do his first podcast. Jude and I discussed how to get into Heaven, and his upcoming surgery. Jude is very grateful to all of the people …
Jude Knows More Than I Thought
I really thought I was doing a great job shielding Jude from the knowledge of his life-threatening medical condition. I thought he only knew that he had a head owie (which he also knows is called a brain tumor) and that it has to get taken out since it had come back.  But, he knows …
Feeling Sick to My Stomach
I gave into the temptation tonight to google something along the lines of “ependymoma brain tumor child survival rates” and am feeling a little sick to my stomach. From what I read, the survival rates are higher for those children who undergo radiation, but at a big cost. Those under age 7 are much more …
Asher is Officially Trouble
Asher just turned 9 months old, but is a real hand-full due to his physical prowess. He’s a super fast crawler and has been table walking for more than a month. Tonight I was carrying Levi and an ironing board upstairs. Asher felt left out and crawled up the entire flight of stairs to get …
Jude’s German
Given Jude’s heavy focus on learning German, I find it funny when I can see the German influence in his English since he sounds like the cutest little foreigner when he does this. He just asked me for the “sun cream” (instead of the sunblock) so he could go outside and have a water gun …
Then Versus Now
I think Jude’s original brain cancer diagnosis was harder to take than the discovery of its recurrence. But, there are some harder parts about this time around. For one, the waiting game is brutal. Last time, he was diagnosed after we arrived at the hospital by ambulance on a Sunday and he just had to …
Asher: The Twisty-Tongued Boy
Asher is a little smooch. He’s such a happy boy. His little tongue is often wagging outside of his mouth, twisted to one side. It’s his way of showing he is extra happy. I’ve never seen another kid with such a waggy, twisted tongue. It’s very cute.
Levi: The 2-Year Old Techie
Levi demonstrates some pretty sophisticated computer skills for a new 2 year old. He knows his way around the iPad as good as me and moves from app to app like a pro. He really enjoys watching Cars in German on the iPad. I got him a new app last night in French that he …
Update on Functional MRI
Interesting development — a partner in my group googled functional MRIs and found that Seattle Children’s Hospital seems to be the best at fMRIs for small children, with a heavy neuropsychological component, where they coach and practice with the children prior to the fMRI. I spoke this morning with the functional MRI technician at that hospital in Seattle …